Make your own free website on Tripod.com

Kennedy Syndrome Support Group

Links
Discussion
What's New
Suggestions
Download
Search

Welcome to my web site!

My name is Charlie Neumann and I have been recently diagnosed with SBMA (Spinal Bulbar Muscular Atropy) otherwise known as Kennedy Syndrome or X-Link. 

At the present time, it is very difficult to find, if any, support or information on this condition in Canada. The purpose of this website is to change this and to develop a support group with the intent to compare note and symptoms. 

The links posted are ones in which I have found to be helpful in finding out information about this condition and the discussion room is a good place to post any questions or answers you may have.

Please feel free to suggest any links or information we need to post on this site.

For More Information contact me at  info@kennedysyn.com

For a Clinical Description click here

 

Hit Counter have visited this website