Kennedy Syndrome Support Group

What's New

Welcome to my web site!

My name is Charlie Neumann and I have been recently diagnosed with SBMA (Spinal Bulbar Muscular Atropy) otherwise known as Kennedy Syndrome or X-Link. 

At the present time, it is very difficult to find, if any, support or information on this condition in Canada. The purpose of this website is to change this and to develop a support group with the intent to compare note and symptoms. 

The links posted are ones in which I have found to be helpful in finding out information about this condition and the discussion room is a good place to post any questions or answers you may have.

Please feel free to suggest any links or information we need to post on this site.

For More Information contact me at

For a Clinical Description click here


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